“We often hear ‘it takes a village’ to bring the right endpoints to clinical trials and the right measures to clinical care. DiMe Paediatric Rare Disease Project brought together this village – patients/families, clinicians, regulators, technology developers, biotechs, pharma – and brilliantly achieved the difficult task of collating diverse opinions and perspectives into a coherent set of actionable recommendations. This brings clarity, enables a more efficient use of resources, and unlocks insights and partnerships that would be difficult to achieve without this coordinated effort. We’re all working towards patient benefit, and this project has brought us closer towards that goal.”

– Mikesh Udani | Co-founder & CEO, Albus Health