“Rare disease research is uniquely challenging, particularly within paediatric populations. Digital measurement holds significant promise to generate new insights into patient progression and treatment response, helping to build a deeper and more quantitative understanding of health and disease. Working with the DiMe Paediatric Rare Disease Digital Measurement Working Group was a valuable opportunity to connect with motivated, highly expert contributors from across disciplines and around the world. It was genuinely motivating to collaborate to tackle shared challenges while working to realise the potential of digital technologies for the benefit of children with rare diseases.”

– Sinead O’Connor | CEO, Ethomix | Adjunct Associate Professor, School of Medicine, Trinity College Dublin