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DiMe Glossary

Patient experience data

Includes data that are collected by any persons and are intended to provide information about patients’ experiences with a disease or condition. It can be interpreted as being related (but not limited) to: 1) the symptoms of their condition and its natural history; 2) the impact of the conditions on their functioning and quality of life; 3) their experience with treatments; 4) input on which outcomes are important to them; 5) patient preferences for outcomes and treatments; and 6) the relative importance of any issue as defined by patients.

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